Monthly Archives: May 2018

The Shove

I read a report recently that most people are poorly fit to their mobility devices and as a result experience pain for at least part of their day. For me, this is also true, I do experience some pain when I’m in the chair for a very long time. At the end of a day’s […]

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Monday

First I was filled with anticipation. Now I’m full of fear. First I was eager. Now, not so much. My new chair arrives on Monday in the late afternoon. We’ve gone through a lengthy process trying to get exactly the right fit, exactly the right wheels, exactly the right height. Measurements were taken and tryouts […]

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Who Was She?

We’ve driven well over a thousand miles in two days. This has meant hours and hours of sitting in a car, I finished a long book, with a punishingly small font, somewhere near the end of the trip. This has also meant that we’ve seen our share of food courts. This is our preferred form […]

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Where Lies Community

Google maps found us a mall where we could stop for lunch. We were on a 12 hour drive heading to Georgia where I am presenting for a couple of days and we were getting a bit hungry. The mall, as promised, was just off the Interstate so it was perfectly placed for a quick […]

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The Spot at The Table

Something rather wonderful happened last night. I was scheduled to have a dinner meeting with several people who I work with on a committee. I was a tad nervous because I’m new to the committee and really only know the person who invited me to participate. Also, I’m a bit socially, um, inelegant. As is […]

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Pushing

We went back on the road on Tuesday. We traveled to Syracuse last night and landed in Boston today. I’ve been thinking about this trip for awhile and in preparation started a new routine at the gym. I typically do an about ahour and a half, broken in two parts, one on the ergonometer and […]

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Chapter Title

She was seated at the next table over. She had seen me come in and had lit up. I understood immediately and waved “hello”. I know what it’s like to suddenly, at the appearance of another, to not be the only disabled person in the room. She, like me, a wheelchair user, pointed to the […]

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Going Pee: A Question About Bigotry

Am I a bigot? I think maybe. Thing is I can’t trust the opinions of the people I ask, who all assure me that I’m not, because I think maybe that the bigotry against those who have mental illness is deep and pervasive. So, I’ve come to ask you. I’d really like to know what […]

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The Answer

I met a married couple, both had an intellectual disability, and I asked them the same question I like to ask when I get to know two people in love with each other. I am curious about how the connection was made, how did they find each other, what were the circumstances that brought them […]

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the list

My new wheelchair has been ordered. It’s all done now but the waiting and the final fitting. The chair is going to take a little longer because I’ve chosen to personalize it by having it painted. But soon I’ll be riding around on a new chair. We are both  excited because this one is faster […]

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